Book Report: The Invisible Cure

I read The Invisible Cure, by Helen Epstein, at least ten years ago when I was on a particularly fevered quest to learn as much as I could about HIV. I was so impressed by her work that I later went to a talk that she gave about her work.

Summary of The Invisible Cure

Epstein moved to Uganda in 1993 to work on an HIV vaccine. She worked across sectors, with politicians, activists, researchers, doctors, economists, and so on.

She challenged the prevailing orthodoxy and the struggled to understand how politics and greed can infect and corrupt even the most honorably motivated humanitarian projects. For me, stories like those told in The Invisible Cure about the power and potential of grassroots community organizing as the most effective solution to community problems always amaze me. She offers insight into the thoughts of the Ugandans with whom she is working:

“As a woman living with HIV,” says Beatrice Were of Uganda, “I am often asked whether there will ever be a cure for HIV/AIDS, and my answer is that there is already a cure. It lies in the strength of women, families and communities who support and empower each other to break the silence around AIDS and take control of their sexual lives.”

Epstein tells the story of “the Ugandan solution to the Ugandan Problem”. The story takes place in the Bush era (so prepared to read about major failings due to political ideologies!). It focuses on the successful reduction of new infections that stem from, Epstein argues, not the billions of dollars from the West, but from the “collective efficacy” of a “shared calamity,” where people helped each other and talked openly about sex, sexuality, and HIV.

The reduction of HIV incidence in Uganda focuses on the “B” of the old ABC prevention methods (abstinence, be faithful, condomize). The “A” was problematic as a huge portion of infections were happening in marriages. The “C” was problematic because there simply were not enough condoms to go around at that time. So, Uganda focused on the “B”. President Yoweri Museveni called for “Zero Grazing” as a means of limiting the numbers of concurrent partners that Ugandans (and other groups, too) had.

And it worked. Dramatically. Before there were millions in funding for HIV prevention.

Thank Goodness

In reflecting on the ten years that have lapsed since I read this book…all I can think is “thank goodness”!

  • Thank goodness that we have more in our HIV toolkit than A, B and C.
  • Thank goodness treatment is now much more widely available.
  • Thank goodness governments have evolved from encouraging “Zero Grazing” as national policy to aiming for viral suppression among 90% of those taking drugs —an HIV prevention tactic I longed for in the 90s and early 2000s.

Of course, the dark lessons, of the bumbling western influence into the affairs of other countries continues.  “Everyone seems to know what Africa needs, but sometimes I think our minds are not really on it,” she writes. “Most of us see only Africa’s contours, and we use them to map out problems of our own. Africa is a career move, an adventure, an experiment. It fades into an idea. We aren’t really looking.”

Those lessons around the neo-colonization that is funding, aid, and imperialism are still ever present. While times have changed, I still recommend this book for you public health junkies out there. It offers a compelling look back and lessons around the importance of community involvement, questioning what we think we know, and challenging the status quo.

Book Report: The Betrayal of Trust

Book cover of the book Betrayal of Trust by Laurie Garrett.
Betrayal of Trust

The Betrayal of Trust, by Laurie Garrett, is another must-read for those of you who have a deep interest in global public health and a deeper interest in wanting to see improvements in the practice of public health.

Praise for the Author

First, praise for Laurie Garrett as an author. Her writing is compelling. She weaves beautiful stories out of tragedy and paints a picture with her carefully chosen words. I have read other books by Garrett, including The Coming Plague, and will keep coming back for more. I did not mind the length of the book, coming in at a hefty 768 pages, but then again, I am an avid reader and this is my field of interest.

Building the Case

Garrett outlines how public health interventions, such as the public supply of clean water, have brought us this far. We are living longer than our ancestors and, arguably, we are living “better”. However, she posits that the world’s public health organizations are in a woeful state with disastrous preparation for “the BIG one”. Collectively and globally, she warns of a lack of preparedness of public health agencies. However, the public health agencies, as underfunded and resourced as they are, are our best defense against microbial threats (through efforts to vaccinate large swaths of the pubic, maintenance of sanitation systems, and responses to actual or perceived threats).

She builds the case that public health systems keep us safe and healthy now. It also ensure readiness for a superbug, a biological threat, and a safe water supply. Public health so often functions in the shadows. We count disease, test the water, make sure your food is safe, and who remind you to get vaccinated. It is the work that helps to build optimism around the elimination of polio or smallpox. And, importantly to me, that work, builds equality and cuts through some of the injustices we see in our world. So, when you hear about CDC or local health department funding cuts, call your representative to protest. We need public health!

OPTIMIZE project

I am thrilled to announce that training materials for health care workers on the introduction of DTG for the treatment of HIV are now online!

A global consortium makes up the The OPTIMIZE project. It’s members are improving treatment outcomes for people living with HIV. The Project aims to optimize ARV drugs and formulations and accelerate their introduction in low- and middle-income countries.  I contributed to the impressive work of the consortium by writing the training materials for health care workers.

These days, the ideal scenario is test and immediately treat all who have an HIV positive test. This is a shift from of treating only those who have low CD4 counts or pregnant, for example.  This is huge! It is a huge move towards equity and justice in health care.

Optimize project. Hands holding HIV medications

Of course, there are challenges to a shift like this. One of the challenges that OPTIMIZE is addressing is around complicated treatment guidelines. Complicated guidelines may include several different drug formulation for multiple populations. The introduction of DTG helps to simplify the treatments overall, harmonize treatment across populations, simplify the supply chain, and save money.

There have been several pivotal moments in the fight against AIDS and this one, an effort to get 90% of those living with HIV on treatment, is one of them! And DTG is a tool that will help achieve the goal.

As always, I am open to new contracts and to working together. Please let me know how I can help you to build effective, exciting, and practice-based trainings.

PS: Read more about the activism behind this work here.

Good news roundup from Tanzania and Spain!

From time to time, I seek out stories that inspire me and challenge me to think creatively about our work. I love learning about the work that other folks are doing out there. So, here is some good news for you!

If you know me, you know how passionate I am about the need for young people to have accurate sexual health education (and resources and access to care and contraception and and and!!!).  I love it even more when young people are active participants in their own learning and design of their education.

Good News from Tanzania

So, it will come as NO surprise that I love this story! Young artists in Temeke District in Tanzania are designing katangas (the colorful wraps that are worn in much of Africa) to promote gender equality and to share reproductive health messaging.  The organizers trained 75 young people who then created their own designs.

Good News from Spain

In a similar light, children can be given tools to help improve even the most desperate of situations.In Spain, an outdoor campaign has gone on for a few years now.  The ingenuity of it is that adults and children see the ad differently due to lenticular printing.  Adults see an image of a child with an awareness-based message: “Sometimes child abuse is only visible to the child suffering it”.  Children, or anyone under 4’3″ sees the same child but with facial bruising and an offer of help that says “If somebody hurts you, phone us and we’ll help you.” I found some data that the ads in combination with other activities that calls to their help line did increase. I’d be curious to see that data teased out to see just how many calls were driven by the street ads.

Good News from Cameroon:

Next up–a good story out of Cameroon!  Tim Immaculate Bih is the first women to be an engineer in Cameroon! As an engineer, she now seeks to consider the unique needs of women and girls as she builds buildings.  She is also hiring women and seeking to improve education in engineering for girls. Amazing all around!

Good News from Vanuatu:

And, finally, a story about food sovereignty.  Cities, towns, and countries, and the Navajo Nation that defeat big business, tax soda and junk food amaze me.  Well, Torba, a group of islands that comprise Vanuatu, a South Pacific country, is now banning all Western junk food! Beyond that, they are hoping to be the first all-organic island by 2020. Incredible.  This may prompt me to add Vanuatu to my travel list! Read more about food swamps here!